Mikeys Walker is finally here ...

Merry Christmas :-)

We are all settled and decorated in our New home! We are so happy to be close to everything and that Mikey has his own room! Mikeys doing great. Dr. Mickey said hes very impressed with his eyes and shouldnt need another surgery!

His walker is supposed to be here before Christmas and we pray this is true. Thats all my little boy wants is freedom to be a little boy. Life is tough at times but we try to make the best of it and when Mikey smiles at you he melts your heart and makes all the pain go away. I would do anything for my baby! We are trying to cope with life one day at a time and even after all this time still hearing he has Spastic Quadriplegic cerebral palsy makes my heart ache. I keep dreaming of the day when he is all better but the reality is setting in. This is our life. Our son is going to always have issues and need the best care possible. God gave me this child because he knew we could take great care of him. Some days I dont think I can do it but at the end of the day its been done. We are so thankful for the support of our friends and family! I dont know where I would be without all of you!!

May everyone have a very Merry Christmas and a Happy Healthy New Year!

Mikeys 2nd Thanksgiving

We are spending Thanksgiving home and not because we want to. Mikey has a fever and a croupy cough. We were up most of the night with him and thought we would end up in the ER but thankfully hes better now. So tomorrow its off to the ped unless he gets better over night.

We are also moving on Saturday so the house is a mess and we are trying to pack! Its crazy! I cant wait till we are settled in our new home!!

Happy Thanksgiving everyone!

Happy Halloween 2010

Mikey had a great Halloween. We made surprise visits and had a nice time with family! Mikey loved his Monkey suit and even enjoyed a kitkat :-)

Mikey Babbles

Well said Poem...

Just wanted to update our blog.. nothing really exciting going on. Mikey loves school and we have some art work to prove it! Hes babbling more lately which is great but still not sitting up.

Im still trying to get used to this being our life. I was at a seminar for Mikey school and they said it perfectly See this poem

Welcome To Holland
by
Emily Perl Kingsley


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

* * *

©1987 by Emily Perl Kingsley. All rights reserved. Reprinted by permission of the author.

Point being we didnt plan this life but this is what God gave us and I truly believe God knew we could raise this little boy in the best way possible. He is loved even by people who meet him once. He has a smile that lights up the room and a laugh that will melt your heart. If you know Mikey you know hes a wonderful miracle and we are blessed to have him as our son.

Hawthorne Day 10-02-10

Mikey had a great time. He got to ride a pony for the first time. He wasnt so sure about it but I think he enjoyed it.

Rest In Peace Great Grandpa

Life always has unexpected turns and on Thursday Sept 23 2010 Grandpa Moscatello passed away. It was a shock to the whole family. I had the pleasure of being part of this great family since May 1997. I lost my grandmother in Feb of 97 and gained 4 grandparents a few months later. I have always felt like I was their grand daughter. What more could I ask for? Mikey doesnt realize how wonderful it is to have had 5 great grandparents. We will make sure Grandpa's memories stay with him and even if he doesnt remember him he will know how much he loved him. RIP Grandpa it was a true pleasure and honor to have known you! XOXO

Lisa check up

Mikey was able to stand for 5 seconds with his shoes and braces on all alone :-) he was able to stay on all 4's for a while and he was moving forward with Lisas help! She said hes doing great :-) We are all doing the right things and have to keep doing what we are doing! FLOOR time is paying off :-) Yea Mikey you go little man!!

Visit with Family

On our way to Cape May we stopped in Bayville to see our Family! We got to meet Sean and Ryleigh the two newest additions to the family. We saw Great Grandma and Aunt Mary Ann and Uncle Danny and Jack :-) It was a nice visit that went to quick!! Mikey is getting better with people thankfully!!

Cape May 2010

Mikey had a great time in Cape May! We took long walks by the beach and saw a lot of our friends. It was so much fun but to short!! Next year we are staying longer!!

Mikeys First Hair Cut

Mikey was such a good boy for Moe. It was extra special since Moe gave Daddy his first hair cut a long time ago! Mikeys growing up to quick for Mommy!!

EEG Baby

Mikey did really well with his EEG.. he cried a lot at first then fell sleep. We had to wake him towards the end and as you can see in the pictures he was a little scared but watching wubbzy from daddys phone! He was a very good boy :-) Now we just have to wait for the results!!

Dr. Mickey VIsit

Mikey went to see Dr. Mickey today and he was very impressed with his eyes. Hes healed well and he didnt meantion surgery. His brain has to train his eyes to stay straight so far this is working well! Time will tell if he needs another surgery down the road but for today we are good!! Yea!

Mikeys sick :(

Mikey had his first ear infection and croup! My poor baby has been sick for over a week. Tuesday he got some meds and is finally feeling better... still not himself but much better then he was!! Check out his new talent holding his bottle with one hand!!

Michael is starting to sit :-)

Short Video of Mikey sitting.. Im trying to upload the longer one!!

Am I really strong enough?

Lately Ive been breaking down a lot more over Mikey. I try to be strong and be positive but the truth is I am scared to death over what this childs future might be. I do whatever I am told to do even when I dont agree. I get mad at the therapist when they tell me things I dont like to hear. I would imgaine this is normal. I am his mother and I get defensive but I do what they tell me to do because even when I dont agree I know these women know what they are doing and I trust them with all my heart. Sometimes the truth hurts.

One day at a time we all as a family make Michael do the things he needs to do. We try our best to help him learn and progress. Will it make a difference in his life? We sure hope so but there are no guarentees. All we can do is the next best thing each day.

I am grateful to have so many people who love and care for him and who point us in the right direction. As far behind as he is, if we didnt have Early Intervention he would be so much worse.

I am still trying to be strong through the tears!

Here are the braces :-)