Michael was born at 29 weeks with a PVL. When he was 12 months old he was diagnosed with Cerebral Palsy. This is our life and how we get by day to day!
Wednesday, May 18, 2011
Tuesday, May 17, 2011
Will the tears always flow?
Ive been having a rough time lately when I think of my son. Hes such a happy adorable boy. I held him tight last night and he actually hugged me as I cried and squeezed him. It was the best hug ever it was like he was telling me Mommy I'm going to be OK. But still its hard as a Mom to see this beautiful child have to deal with such a hard life. He doesn't know any better now but one day hes going to know that his life is so much harder then ours. Hes going to wonder why he cant run with the other kids and why hes different.
It breaks my heart everyday. Yes I know it could be so much worse and I am grateful for what he can do but as a mother you want you child to have the best life ever.
Hes been making great progress lately and School has done wonders for him. No one says he will never .... walk, talk or whatever. No one has counted him out as totally disabled. We don't know what his future will be like and that's the hardest part. There are many people with CP that live relatively normal lives. I'm just scared of the future. As Ive said many times before no ones future is guaranteed. My life could change tomorrow. So today I don't take anything for granted. I guess its back to the old saying One day at a time is all I have!
It breaks my heart everyday. Yes I know it could be so much worse and I am grateful for what he can do but as a mother you want you child to have the best life ever.
Hes been making great progress lately and School has done wonders for him. No one says he will never .... walk, talk or whatever. No one has counted him out as totally disabled. We don't know what his future will be like and that's the hardest part. There are many people with CP that live relatively normal lives. I'm just scared of the future. As Ive said many times before no ones future is guaranteed. My life could change tomorrow. So today I don't take anything for granted. I guess its back to the old saying One day at a time is all I have!
Monday, May 2, 2011
March of Dimes 2011
We decided to walk and raise money for the March of Dimes. On Saturday May 1st 2011 we walked 5 miles and raised $1000 for a wonderful cause. I never knew what the march of dimes was until Mikey was born 11 weeks to soon. Im so grateful we were able to raise money for this wonderful cause.
Hope you can see the doves in the picture. They named all the kids who didnt make it into this world or didnt stay long and then released the doves. What an emotional momement!
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