So far behind...

I wanted to keep this blog up to date but its been hard to do. I will try harder in 2012. This was a rough year for me emotionally. I was finally able to face reality that my son is handicap. I went threw the denial phase the anger phase and I finally think Im at acceptance. I keep saying one day at a time. I feel so much love for this little boy and will do whatever I have to make his life the best it can be.

Merry Christmas to everyone and I promise more pictures soon. I have them all on facebook :-) Its much easier for me to keep up there for some reason.

Handsome man

Mikey is such a cutie :)

Bath seat has arrived / Eye Check up

I am so glad we finally got Mikeys bath seat. Tonights bath was no picnic for me. Since Mike wasnt home it was just me trying to figure this thing out. The poor baby wasnt to comfortable but I think he liked having more room. I promised him tomorrow we would have more fun. Ive been dying to have fun bath time but it never happened because he didnt have the room to move and he wasnt sitting. Now we have much more room!! Hope tomorrow is better :-)

Today was also Mikeys 6 month check up with Dr. Mickey. He said everything was great! Good news is the best news!! Hes impressed at how well the surgery corrected his turn. He said to come back in 6 months just for a follow up.

It was hard waiting for the Dr because there were kids in the waiting room looking at Mikey like he was different. I guess because hes our child he doesnt seem any different to us but to a stranger they are wondering why is that kid not walking or talking or sitting up? It was hard and its just the begining ... but we will face these things and get threw them one day at a time.

Signing off... time for some mommy and daddy time which we rarely get :-)

Happy 4th of July

Michael enjoyed the fire works and the parade! Hes such a happy baby! He even learned to stick his tongue out at Mommy :-)

First Circus for Mikey

The above photo tells all! He did really enjoy the circus!



The juggling was his favorite!!

So emotional lately...

I can hardly answer the question are you ok? Without crying lately. Am I ok? I dont know.. I guess Im ok. Im trying to be strong for my son and my family. I dont want to be the one crying all the time. I dont want people to feel sorry for me. Believe me my son is the happiest kid around and even with all our struggles he turns my tears into smiles but I still cry. It seems lately that every little stressful thing pushes me over the edge! If my coffee is made wrong I will burst out crying.. is it over the coffee? No its the one thing that pushes me over my limit. I was even wondering what a nervous break down felt like. I was really wondering if Im headed there or this is normal for a mother with a child who has special needs?

I think I need a day or so of just crying then the tears will dry for a while I can move on with life until I need another day to cry it out. Do I need therapy? maybe? who knows ... sometimes I dont even know exactly why Im crying I just know its hard not to cry.

How can I cry when I have this... http://youtu.be/C62sQzjaBv4

Mikey is making so much progress lately. I am so proud of him yet still so scared of his future. One day at a time!!! I just wish I believed that!

The Childrens Therapy Center

The Childrens Therapy Center is such a wonderful place. We went to a gala for the school and it was so hard not to cry. When I say cry its not tears of pain it was tears of joy and emotions. Seeing how much these teachers and the CTC staff loves these kids was very emotional for me.

The day we went to look at this place I would have left Mikey there. Thats how comfortable and caring these wonderful people are.

Mikes class made some projects to auction off and here is what we won..



It was a wonderful night for an even more wonderful cause. I love that place and I pray Mikey can stay there when he turns 3. Im sure other places are good to but this place is like home!

Mikey watching Yo Gabba

Mikeys Favorite Song

Normal Bed time routine lately

Elmo :)

Will the tears always flow?

Ive been having a rough time lately when I think of my son. Hes such a happy adorable boy. I held him tight last night and he actually hugged me as I cried and squeezed him. It was the best hug ever it was like he was telling me Mommy I'm going to be OK. But still its hard as a Mom to see this beautiful child have to deal with such a hard life. He doesn't know any better now but one day hes going to know that his life is so much harder then ours. Hes going to wonder why he cant run with the other kids and why hes different.

It breaks my heart everyday. Yes I know it could be so much worse and I am grateful for what he can do but as a mother you want you child to have the best life ever.

Hes been making great progress lately and School has done wonders for him. No one says he will never .... walk, talk or whatever. No one has counted him out as totally disabled. We don't know what his future will be like and that's the hardest part. There are many people with CP that live relatively normal lives. I'm just scared of the future. As Ive said many times before no ones future is guaranteed. My life could change tomorrow. So today I don't take anything for granted. I guess its back to the old saying One day at a time is all I have!

March of Dimes 2011

We decided to walk and raise money for the March of Dimes. On Saturday May 1st 2011 we walked 5 miles and raised $1000 for a wonderful cause. I never knew what the march of dimes was until Mikey was born 11 weeks to soon. Im so grateful we were able to raise money for this wonderful cause.

Hope you can see the doves in the picture. They named all the kids who didnt make it into this world or didnt stay long and then released the doves. What an emotional momement!

First day out on my Bike

Mike got a bike from Grandma and Grandpa for his birthday and hes been riding it around the house since then. He finally got to enjoy it on this beautiful day we had today. He loved it .. even though his pictures dont say so lol. He was gooing and gaaing all the way down the street!

Easter was wonderful as you can see!!

Mikey had a wonderful Easter this year! He wasnt sick for the holiday which was very exciting since hes been sick for every holiday since last Thanksgiving! We enjoyed Saturday with Nana, Pop pop, Uncle Brian and Great Grandma and Great Grandpa! The Sunday we spent the day with Grandma and Grandpa, Aunt Donna and Uncle Charlie. Mikey had his first really holiday dinner! He loved Aunt Donnas stuffed mushrooms, yams and ham! He had a great time. Nothing is more wonderful then being able to spend the holidays with your loved ones!

Happy 2nd Birthday Mikey

I cant believe my little baby is 2!! Where does the time go? In the past two years Ive watched my baby grown into a toddler! We've made some progress but its still very slow. Mikey is able to babble a lot. Hes scooting around in his walker and on his bike! He loves Wubbzy and is obsessed with TV lol. We are just started to really give him soild real food. Slowly getting away from the baby food and soon we are moving off the bottle. He knows how to drink from a straw cup but doesnt always chose to. One day at a time! Most of all Mikey makes us laugh and smile all the time. He is the happiest kid I know!

Happy 2nd Birthday Michael Joseph we all love you so much!! Thanks to everyone who helped to make his 2nd birthday a wonderful memory! He enjoyed every party he had and everyone there!!

Is Mikey really going to be 2????

Im sitting here trying to finish up planning Mikeys Birthday party thinking can he really be 2? It amazes me how fast times flys! He has come a long way but has such a tough road ahead of him. I look at kids his age and it breaks my heart then I look at him and he laughs and Im all healed again!

Physically hes not like a 2 year old boy but he is so happy and brings us such joy every day. Of course I wish he would over come all this issues he has but at the end of the day he is the sweetest little boy. If he has the stubborness of his mother he will over come. I am not one to just give up and Im pretty sure he isnt either!!

So now Im off to plan the rest of his party... Pictures to follow :-)

Happy Birthday to my favorite little man!! Mommy, Daddy and the rest of the family love you more then words can every day!! XOXOXOX

Snow Time

This was Mikeys first time in the snow! EVER!! He was sick when he snowed last year and this year to! Finally we were able to get him out to play :-) He enjoyed it and Mommy tried to build a snowman. I think we will try again this week because its gonna snow again of course!!

Mikey Pictures